Tag Archives: parenting

mother’s day

Sunday is Mother’s Day. This year, I decided to end my relationship with my stepmother, who raised me, and my biological mother is dead. Both of these women lacked the resources or capabilities to be effective parents. My mother-in-law is amazing, but she did not raise me. And so there is a bit of an empty space where a mother should be. Most of the time, this does not feel like sadness. It feels like relief. Every year, I used to try and find a neutral card to give my stepmother. There were rows and rows of cards with pictures of flowers and heartfelt, saccharine poetry. Generally, I’d find something blank and scrawl something inside.

Dear Mom (I don’t want to call you Mom, but remember how you forced me to when I was 8?):

I don’t really know you even though we lived in the same household for many years. Please accept this candle/lotion/chocolate that I felt obligated to purchase for you. I hope the weather is satisfactory today.

Regards,

Angela

That’s what I always felt like saying, anyway.

This dumb photo of Gwyneth Paltrow and her mother made me cry one time.

gwyneth_paltrow_and_mother_blythe_danner-320x425

My friend recently lost his mother. Although I wasn’t close to my mother, and I didn’t know her very well, and I have in my possession only one photograph of us together, and I rarely think about her or cry about her, I feel that absence intensely from time to time, like  pain in an amputated limb. I am so sorry for my friend, who was close to his mother. I know the pain he must feel is 1000 times more intense than what I feel, and that there is nothing anyone can do to change any of that.

I guess what I am trying to say is that Mother’s Day, like all holidays, can be complicated.

I have two lovely boys, and I hope I know I am a good mother to them and I know I can do better. Last night, I helped Ben cast his Mario Bros. toys as characters in Hairspray (again). Mario is Link. Luigi is Corny. Princess Peach is Amber. Toadette is Tracy. I was exhausted after work, and this made me laugh and laugh. This morning, Elliott insisted he didn’t need a sweater, and I told him to step outside and see. I watched as he stood alone in the backyard and felt the breeze wash over him, squinting into the sunlight. He finally agreed to the sweater. Like me, he is stubborn. It is sometimes frustrating, but I also love that he needs to decide for himself.

I want to say thank you to these little guys for teaching me what it is to be a mother even as I am still figuring it out. I want to say thank you to them for making Mother’s Day meaningful to me, something to celebrate. And I want to say that I am sorry to those of you out there for whom this holiday is painful and complicated and nothing like the cards or commercials try to convince you to believe that it should be.

Let’s make this day, and every day, our own.

Photo credit: http://jjscholl.wordpress.com/2010/05/07/i-heart-mom/

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boy toys

Ben used to carry a purse, a purple, beaded, sparkly thing, with a long strap. He usually kept a little doll inside of it, Daphne from Scooby Doo or Tinkerbell. He loved Daphne so much. I ordered her from Ebay, and she arrived just in time to come with us for a weekend beach trip. I buried Ben in the sand, and I buried Daphne right beside him. They both smiled, sand in their hair, as I took their picture.

We didn’t let him take the purse everywhere. We never explicitly told him he couldn’t; we just redirected him, enticing him with something even more amazing to bring with him instead. I felt bad not letting him take it with him, but I didn’t want him to deal with the stares and awfulness of strangers. We did let him carry it whenever he wanted at our house or at the house of family members. But even family members say things sometimes. Surprising, terrible things.

When he was two, he really wanted a broom for Christmas (I swear.) So, I walked into Toys r’ Us, which I hadn’t visited since childhood, and discovered that there was still a visible divide between “girl toys” and “boy toys.” I knew where to look for the broom. On occasion, we’d let the kids get Happy Meals at McDonald’s. “Girl toy or boy toy?” they would ask at the drive-through (not thru) window. “The Hello Kitty watch,” I would snap, refusing to identify it by gender, hoping my son hadn’t heard what they said. Knowing that he had.

Up until he was about six, Ben regularly played with Barbies, a Strawberry Shortcake, mermaids, a dollhouse (which we still have). His favorite movie was Cinderella. His favorite colors were pink and purple. Still, I persuaded him to not take his Strawberry Shortcake to kindergarten for sharing. Because although I believe passionately that he should not be ashamed of doing so, I also know the cruel reality of a classroom, and I didn’t want to set him up for ridicule.

Ben’s predilection for “girl toys” gradually changed as he became more interested in comic books, Mario Brothers, Legos, and superheroes. Barbie now frequented the Batman lair. Mario slept in the doll house. His favorite color is now green. Eventually, the dolls receded to the bottom of the toy box, seemingly forgotten. When we moved last year, I found a pile of them, and asked Ben if he was ready to give them away to his baby cousin. He thought for a few seconds, and nodded. He was ready.

We kept two Barbies, named Peehead Sr. and Peehead Jr. Ryan tells the boys these insane and hilarious stories based on the dolls and figures they own, and the Peeheads, who are naked and maimed after years of play, are often featured in those stories.

Peehead Jr. She has had a hard life.

Peehead Jr. She has lived a hard life.

A couple of days ago, Ben was playing with Peehead Jr. and said he would like to buy her some clothes. On the way to Target, he excitedly discussed outfit possibilities and thanked me profusely for taking him. But as we neared the parking lot, his demeanor changed. “I just feel a little embarrassed,” he said. I parked and turned around and looked him in his sweet little face and we talked about how there shouldn’t be a such thing as boy toys and girl toys, that kids can and should be able to play with any kind of toy they want. Ben seemed slightly reassured, but he’s not a dumb kid. He knows the difference between the ideal and reality. “Listen,” I told him. “In our home, you are safe to play with whatever you want to play with.” That seemed to work okay.

After perusing the options, he chose an assortment of rainy day Barbie clothes–the package included a rain coat, rain boots, a coffee mug, and two dresses. “This is perfect,” he said. “Because it’s raining outside.” He wanted to carry it at first, but I noticed as people walked by him, particularly one older boy with a skateboard balancing on his head, he would hide it behind his back. I offered to carry it for him, and he seemed relieved. “Ben,” I said. “If someone says something mean to you about those Barbie clothes, I will punch them.” I did not intend to say this, and I shouldn’t teach him to resolve problems with violence. But I was so angry that he had to feel ashamed of wanting something as innocuous as tiny rain-appropriate attire. He just laughed. I told him I didn’t mean it. But I think I did mean it. If a stranger made fun of my son in the throw pillow aisle at Target, I don’t actually know if I could stop myself from punching that stranger.

After buying it, we stopped at the “cafe” for a snack. The Target Cafe. Because I’m classy like that. He went to find us seats, and I watched him as I waited for our order. He slipped the box out of the bag and studied it, smiling. But when a family walked by outside, on the other side of the window, he threw it onto the table and covered it with his hands. The family didn’t notice. This was very difficult to watch.

Ben asked me what my favorite kind of Barbie was when I was a kid. I told him about this one Barbie I had, Perfume Pretty Barbie, that I received one year for my birthday. I didn’t tell him about how I pretended to be excited when I opened the present, how I maneuvered her arms and legs and wondered what the point was. I was not interested in Barbie, ever. I was interested in Thundercats and Transformers and tetherball and arm wrestling. I had neither an interest nor an inclination to be inside of the house, strapping infuriatingly delicate sandals onto plastic feet. But that, of course, was okay. I had the ability to move between “girl toys” and “boy toys” with fluidity, because the stigma wasn’t as great.

As I got older, however, girls stopped playing and began walking in groups, chattering about boys, and I wanted to play basketball, or softball, or whatever game was going. Eventually, both girls and boys began calling me a “dyke.” I was not doing what I was supposed to be doing, what every other girl was doing. And this apparently meant I wanted to have sex with other girls. There’s nothing wrong with having sex with other girls, of course. But one thing clearly doesn’t lead to the other.

On the way home, Ben spoke of the possibilities for Peehead Jr. “Maybe she can have a friend now that she has clothes…Maybe we can make her a closet…Did you know that her real name is Francisca?” I want to lock all of that sweetness inside some sort of bulletproof structure and protect him inside of it. But I can’t. I know that.

I don’t know whether Ben’s interest in Barbies means he will be gay. I suspect that’s why people punish their boys for even wanting a baby doll or a purse. Do they really believe that playing with a certain type of toy will somehow alter the genetic composition of their children? Why do ignorant bigots get to make my child feel badly just for being an open, loving, amazing person? What I do know is that Ben does not fit neatly inside of the box these people have created. And I never have either. And, to be honest, neither does anyone I know. What I do know is that we should abolish the terms “girl toys” and “boy toys.” These terms serve no purpose, except to limit and harm.

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write-off

Image

There have been a rash of burglaries on our quiet suburban street, and the neighbors are whispering suspicions in front of our kids. Who was that dark man in the white car parked outside your house the other morning? It was my brother-in-law, actually, and we were going for a nice suburban jog through these quiet suburban streets. Oh, okay, they say. We should all keep an eye out. Yes, we should. Thank you, I say.

I have a son who is an obsessive worrier. He’s also too smart to fool. The what ifs fire rapidly. What if someone breaks into our house? What if they steal our car? What if they kidnap me? What if they hurt me? What if…? It will be okay. It won’t happen. I promise you it won’t happen. Your dad and I would never let that happen. “But it’s always a possibility,” he says, effectively dismantling any assurance I could ever offer. That night, he runs screaming into our bed in the dark, early morning. I wrap my arms around him and rub his back and he settles into sleep. The next night, he does not want to go to bed, but we convince him that it will be okay. When he’s finally asleep, I sneak in and make sure the blinds are closed tight, that no lurker could see him if they tried.

All of this is to say that I am going to work and I am caring for my children, and I am not spending my days thinking mean thoughts about my stepmother or her son, my half-brother, Jaden.

My father was looking for a babysitter so he can spend a weekend with one of his lady friends. He is at my house for a visit this morning when my stepmother texts him. She doesn’t want my little brother to stay at my house. She is worried that I hate him, that I will be mean to him, that I think I am a better parent. The bar is set very low on that last one. I do not abuse my children. I do not hit my children with high heel shoes, or make them kneel on gravel, or tell them they are worthless, or force them to hug their uncle who touches them inappropriately, so, yes, at the very least, I am a little bit better. “I am concerned,” she says. She is concerned that I will damage him. Oh, the irony! I love my brother Jaden. I am only ever kind to him. He’s not even two years older than my eldest.

I interact with this woman a few times a year. I send her a text message on her birthday. I send her a card when her mother dies. It takes a tremendous effort to squeeze out these tiny kindnesses. This woman was physically and emotionally abusive to me for my entire childhood, and I have managed to say hello and even I love you and continued to call her Mom instead of Lucy at the biannual family gatherings.

For some reason, this was it. We are finished. Here is the dictionary definition of write-off: “an elimination of an item from the books of account.” Lucy, consider yourself written off.

Photo credit: http://www.carfinderservice.com/car-advice/5-steps-in-preparing-a-write-off-interest-for-taxes-on-a-car-loan

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inheritance

brainfromplanetarous

My kids can pretty much forget about inheriting any material wealth. Ryan and I both have MFAs in creative writing. In fact, they’ll be lucky if they don’t inherit any student loan debt. It’ll be an exciting race to the grave to pay those off. My talented friend Anthony has a funny and honest blog called My Gay Mom. He posted a couple of days ago about he and his wife’s decision not to have children because he doesn’t want to pass his bipolar II disorder onto them. This hit pretty close to home. Our first kid, Ben, had many developmental delays. At 20 months old, he could recognize and say every letter in the alphabet, but he couldn’t say “Mom.” He had obsessive tendencies, like lining up Tupperware containers for several hours at a time. He also had sensory processing issues. He had to sleep with paper towels pressed against his cheeks, and would crumble them into tiny balls every night. He couldn’t stand amusement parks or crowds. He didn’t truly begin talking until after he was 3 years old. A lot of that has fallen away, but he still gets some speech help, and it is clear that like Ryan and me, he has obsessive compulsive disorder. It is very difficult to watch your child suffer what you have suffered. You give him tools to try and help him manage it. You read books. You seek the help of professionals. But nothing takes it away.

We were certain things would be less difficult with our second child. The day he was born, it was clear we were naive. In fact, the very next day, Benjamin came down with the stomach flu. Elliott had severe jaundice and needed to be hospitalized. Then he had severe digestive problems, severe ear infections, severe sensory processing problems. A severe speech delay. He was ultimately diagnosed with autism. There was a period of three years that were almost unbearable.

Ryan and I have a genetic predisposition to have children who struggle with the things that many kids and parents never have to worry about. I’m not complaining. What I am saying is that sometimes it is difficult to know that we are the ones who gave these struggles to these people whom we love more than any other people in the world. And it is difficult to help them navigate through situations that we still have trouble navigating through. Of course, we have gotten better at understanding and managing our disorders as we’ve grown older, but put me in a crowd of people on a busy day at Disneyland, and watch me disintegrate. Still.

And now we’ve given a combination of our strange brains to our children. That is their inheritance.

Having children isn’t really a practical decision. One day, my uterus demanded babies, and we simply did as it commanded. We painted a room, and put a crib and lots of other baby-sized things in it, and I felt a tiny human grow and press against the inside of my body. It’s a terrifying and incredible process. We read some books and made some plans, and almost none of that prepared us for the actual experience. Now we have these extraordinary boys, and, like every parent, we watch as the combination of our strengths and flaws takes shape in them. I hope that we have given them more good than bad. I hope that we can teach them to, even on the very worst days, look up from whatever they struggle with and see that there is so much more.

Photo credit: http://www.monsterbashnews.com/pics/brainfromplanetarous.jpg

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Frankly, Virginia, It’s Complicated

*Warning: This post discusses the existence of Santa Claus.

I hate the idea of Santa Claus. No really. Despite all the Christmas crap I have—candy cane mugs, snowmen candy dishes, Christmas tree dining set for sixteen, bath towels, door mats, nutcracker butter knives, Santas that sing, Santas that laugh, penguins that ring bells, and garland that sparkles in every single room—I hate it.

Before I had kids I always thought that I wouldn’t perpetuate such a myth. Likewise, the Tooth Fairy and the Easter Bunny were out. I decided my kids would be somewhat alone among their peers but would be better for it. They wouldn’t run around believing that a kindly old guy breaks into our house once a year and sneaks around so quietly that neither dogs nor mom would hear it. As an added bonus, they wouldn’t fall prey to believing that this same old guy is “watching” them at all times—which as an adult is, honestly, creepy. We could also steer away from sitting on mall Santas’ laps and writing letters that I “mail” (which I don’t) and hide in my underwear drawer where I can pull it out and refer to the list. No, my kids were going to be so above all that.

And then I had kids and it was hard to ignore the enormity of this myth. He was everywhere. On Coke bottles and M&M bags, in TV commercials selling cars and toys and even in our home: soap dishes, music boxes, cookie cutters. Not only that, but wherever my kids went between November and December 26th, people would engage my children in Santa-driven conversation: So, what are you going to ask Santa for this year? Did you get what you asked for? I tried not to roll my eyes.

Early on in our kids’ lives, my husband and I were up late one Christmas Eve wrapping presents when I labeled one, To: Bella From: Santa. My husband was upset. “Why should Santa get all the credit for these presents? I want to give her the one she really wants. Santa can give her the clothes.” I hesitated; he had a point. Why did we work so hard saving up, sneaking around shopping, and hiding boxes in trash bags in our garage only to fork over the good deed to an old man who seemed to have a secret relationship with our kids? Not cool.

And yet, each year, as Halloween rolls around, and the Christmas tinsel starts lining the aisles of Target, my kids start to glow with the buzz of Christmas. They sing holiday carols in the car at full volume. They start drafting their letters to Santa: one edit, two edits, Mom, can you proofread this for me before I send it off? I want to be sure it’s right. They love to make holiday cards and turn on all the music boxes and snow globes at once. They love making peanut blossom cookies and rum balls, sugar cookies with way, way too much frosting and globs of dark green sprinkles. They drink lots of eggnog and enjoy way too many Christmas-centered movies where everything always ends up with the kid getting what they desperately wanted, divorced parents suddenly reuniting, and kids being privy to something that adults can’t seem to understand.

Just recently my nine-year-old asked me if it seemed odd that the Tooth Fairy was real but that monsters were not. I was thankful my back was to her. How was I to respond? Hadn’t I been preparing her to question everything in her life? Never talk to strangers. Don’t trust anyone but your family. Never ever sit on a man’s lap in the food court of the mall even if he’s wearing a suit. Adults aren’t always right.

I know, right, was all I could come up with.

This might be her last year—maybe two if we’re lucky. Her brother is two years younger, and I imagine that if she doesn’t tell him once she finds out, then she will sit arms crossed by the Christmas tree tired and scornful—angry that her brother woke her up at six in the morning for not-magic.

Like many parents last week I hugged my kids until they squirmed from my arms. I tried not to let them see me cry every time I thought of the families of the victims of Newtown, Connecticut. I obsessively worried about my kids at school; I took them late one day this week because I couldn’t bear to let them go. At some point I had to tell them what had happened. My daughter was saddened by this, but my son simply replied that it was sad but couldn’t Santa bring them back to life. He would ask Santa. After all, he’s magic, Mom.

And this is where I have to ask myself if I did the right thing. Was it a good thing that I allowed them to believe in magic? In the kindness of a goodly old man? In non-unionized elves and flying reindeer? Things that will seem all too silly when they know. And the answer I come up with again and again is yes. Yes, Virginia it is okay to believe in something that isn’t real.

I am glad that my son believes those kids in Newtown can run back into the arms of their mommies and daddies. That, in his mind, they will get up while it is still dark and shake their parents awake. Look, Mom. Santa came! That those families will sit around their trees, happy and complete, ripping open gifts, shrieking and crying, kissing and hugging as though there would never be a day more joyous. I am thankful that this is what he believes. Believing in it makes it real, and isn’t that what childhood is about?

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moving

I get an itch when I stay in one place for too long. I always said I wouldn’t move my kids as much as I have moved, but I never hated it. I looked forward to it. After a year or two, I thought, we have been here for too long. But I recognize that maybe it wasn’t ideal. Maybe it is a good thing to have friends you have known since you were a child, to have a mutual record of ridiculous secrets and outlandish ambitions. One of my family members recently accused me of thinking I am a perfect parent. I know I am not. Since Benjamin was born, we have lived in one apartment and four different houses, one of which was foreclosed upon. That is exactly the opposite of what I had planned. I know that moving too many times is disruptive, particularly when you have two children who need routine more than most. That is not good parenting.

We just moved again this weekend. We painted the kids’ rooms their favorite colors and we set up their rooms first. We tried to keep a routine, and they didn’t switch schools or anything. Elliott protested a little more than usual, but it was nothing like three years ago, the last time we moved, when I had to unpack everything in 24 hours just to stop the screaming. The plan is to stay here for a few years, save up, and buy a house. And then never move again. At least not for a long, long time. Moving is hard.

Still, when I think about living in one place for a very long time, I admit that it makes me feel a little panicked and even claustrophobic. I know that it is best for the kids. I know that it is probably best for me. Earlier this year, Ryan and I participated in that mindfulness study that required us to regularly sit still for a very long time and listen to our own breathing. It was one of the most difficult things I have ever done, and one of the most beneficial. And I haven’t done it as much as I should since then.

My friend Michelle shared this Mark Strand poem with me last year, and all I could think was, YES.


Keeping Things Whole

In a field
I am the absence
of field.
This is
always the case.
Wherever I am
I am what is missing.
-
When I walk
I part the air
and always
the air moves in
to fill the spaces
where my body’s been.
-
We all have reasons
for moving.
I move
to keep things whole.
I can and will stay in one place, but I will never stop moving. I will just move within that space.
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more than just fingernails

Elliott has long, dirty fingernails a lot of the time. I cut them no more than once per week, no matter what. When they get long and gross, it bothers me not just when I see them, but all throughout the day. I think about it when I wake up, at work, over dinner. It sounds like I’m exaggerating, but I am not. I used to judge people whose kids had long, dirty fingernails, and I guess I still do. So I know that some people see his nails and probably judge me. But cutting Elliott’s fingernails is one of the things I most hate to do in my life. Here is how it goes. I tell Elliott about 30 minutes in advance that it is time for the weekly trim. We read a social story that I wrote for him on PowerPoint on my laptop. The story is called “Elliott, It’s Time to Cut Your Fingernails!” The exclamation point tries (and fails) to instill a sense of lightheartedness. The story features photos of him, me, nail clippers. It gives strategies for relaxing during the process. Count to 10. Breathe. Sing a song. He loves the story. “Read it again, Mommy,” he says. So we do. Finally, I tell him the time has come and that when we are all finished, he will get a fruit snack or a lollipop. He seems prepared. He seems calm.

But as soon as I sit him in my lap and he catches the glint of the clippers, he begins twisting out of my arms. “I have to go potty! I want a treat! I don’t like it! No! I have to go potty! I want a treat! I want daddy!” and so forth. I have cut both of the boys’ nails since they were born, so it is just us two, and sometimes that makes me sad. I don’t want to be the one inflicting one of the worst routines in his life on him. He kicks me. He begins sobbing. He writhes and screams. I eventually wrap my legs around him and angle my body such that he cannot move his limbs. “Get me out! I can’t move!” he screams, and I feel abusive. My heart beats more quickly. As he trembles and cries, I try to block it out and do the work. I cut the nails, one by one. It is an excruciating, slow process. Sometimes it takes twenty minutes. The toenails are worse than the fingernails. When we finish, his face is smeared with snot and tears. I hug him deeply and whisper I am sorry and that I love him and he cries and heaves into my chest until eventually he calms down and begins breathing normally again. He doesn’t normally enjoy long hugs, but he has been traumatized, so this hug will sometimes last five minutes. Suddenly, he stands up as though nothing happened, the tears already disappearing from his eyes. He touches the wet splotches on his face with curiosity, seeming almost surprised to find them there. “Fruit snack?” he asks, and I give the tiny package to him. He devours the fruity globules as though nothing ever happened.

Last year, there was a period of several weeks when the preparation and the social stories and the treats all worked. No screaming. Minimal fidgeting. And then…it just started being awful again.

Elliott is doing so well. I have no business complaining. He’s doing great in school, he has friends, he plays well and gets along with his brother. His speech is improving rapidly. He is getting bigger and stronger. He is happy. He is confident. He is smart. He is funny. He is adorable as hell. When I am cutting his fingernails, though, that all fades away. Something is unmistakably wrong, and nothing I do seems to fix it. He is hurt and crying and trying to escape me. He screams for me to stop, stop, stop. In those moments, I am reminded, acutely, of what autism looks like. Here I am, it says. You cannot ignore me. The fingernails become more than just fingernails. Then we do it again the next week.

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best-case scenarios

My friend Lisa shared this today on Facebook: “You’ll meet the perfect person, who you love infinitely, and you even argue well, and you grow together, and then you get old together, and then she’s going to die. That’s the best-case scenario.” –Louis C.K.

Last night, Ryan and I were talking about time. I had read this Angelica Huston interview and she says that no one can tell you how quickly time passes. I know this is true. I also know it is cliche. But when I think about it too hard, it is still terrifying. It is just like no one can tell you how fucking tired you will be when you are caring for a newborn. They try to warn you and you think, yes, I know what tired is. I’m in graduate school and I work 3 jobs. But this kind of tired is in your bones, your skin. It permeates everything. I remember that I felt that way, but I can’t actually feel it anymore. And I can’t explain it to people who haven’t experienced it, either. I just know that when a person without children tells me he or she is tired, he or she does not know what they are talking about. Unless they are, like, a P.O.W. That kind of tired isn’t real to me now anymore, so I don’t know what I’m talking about either.

Anyway, we got to talking about how you have kids and you love them so fiercely it almost hurts and then as they get older, they move away from you physically and emotionally. They become independent; they are supposed to. You work their whole lives for them to become relatively happy, functioning, independent humans. That’s your job, and theirs. But it’s like someone scraping your heart out of your chest slowly, over time. I have done the math. In approximately 1 year, Ben won’t sit on my lap or let me carry him. In another year, no hand-holding in public. In another, no kissing and hug resistance. That’s what he should be doing. Again, that’s the best-case scenario. He could become a drug addict or get cancer or punch me in the face and then my heart would break more. He will be 8 on Friday. He will be 18 in 10 years. And 10 years isn’t anything at all.

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the screamer

Ben and Ryan write a comic book series together. Ben is Art Man, who draws what he needs in a pinch. Elliott is The Screamer, who screams so loud he disables his enemies. It is an inside joke. Sometimes it’s funny and sometimes it’s not. The boy has screamed more than most other boys I know since he was about 14 months old to his present age, almost 5 and 1/2. It used to be for hours and hours, literally 6 to 8 hours per day, and I would dream of escape to the grocery store, the appropriate hum of the lights, the cereal boxes organized just so, my fellow shoppers avoiding eye contact, the soft “hello” of the checker, everything so civilized and sane.

This boy has come far, and he no longer screams for hours each day. Mostly, the screams are whines now, and he has more words and I can understand him more and more, so less frustration. Still, there are days where he will scream an hour straight, where he will strip his clothes from his body, throw his tiny orange sandals at my face, rip my hair. Sometimes I blame it on the autism. Sometimes I blame my parenting. I am extremely ashamed of this, but sometimes I wonder if he simply doesn’t like me, or if he will one day be a terrible person.

We are not supposed to think these sorts of things. I hate that I sometimes think these sorts of things.

He sometimes screams so much that I just go numb. I can feel the people in the museum or on the street or in the store staring at us–he writhing in my arms, wrenching his body away from mine, eyes filled with tears of rage, me, juggling his unpredictable limbs, attempting to both ignore him and prevent him from injuring himself. He recovers quickly, as if it didn’t happen. He skips away and plays with bubbles, and laughs, too loudly, the tears still in his eyes. I don’t know if I recover. I think each round takes a little something from me. But it doesn’t matter. We move forward.

This morning, he comes into my room and touches my face with that delicate hand of his, with those long, slender fingers. He says, “Good morning, Mommy.” He politely asks me for juice, for Chex, for vitamins. Eye contact is still difficult for him, even with me. It is there, it is improving, but it is fleeting. I ask him for a hug and he kind of touches his forehead to my rib cage. Most hugs are elbows and leans and fidgets. Occasionally, when he is very tired or very sad, I get that melting into your body hug that I crave.

Of course, I am grateful that he even lets me touch him, as he didn’t used to. Of course, I am grateful for all of his strides, for his intelligence, for his humor, for everything that he has given to me. Of course, I know he is not a terrible person. He is just a boy who sometimes struggles just as I sometimes struggle. There is no lesson here. As I have said, we move forward. I hope the screaming stops soon.

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mindfulness

Last night, Ryan and I rolled our mats out onto the carpeted 2nd floor of a freshly stuccoed behavioral health clinic near our house. The lights overhead are fluorescent and there is a constant rumble of air conditioning—it is always too cold, as it tends to be in these types of buildings. On one wall, there are several poster-sized photos of the clinic’s employees, under the phrase “Teamwork.” The employees wear toothy, gleaming, teamwork-y smiles and bright, solid polo shirts. These overly happy, middle-aged white people are posed in an assortment of humorous positions—back to back with arms crossed, and even in a pyramid. When I look at the photos, I imagine the details of the pyramid formation, knees digging into quivering, doughy backs, a photographer nervously clicking. The idea seemed hilarious and harmless, but there’s been a violation; the intimacy is forced. It is uncomfortable to think about.

Hugh, our leader, a tiny Irishman with a heavy brogue, a receding hairline, and exaggerated, almost cartoonish, facial features, tells us to lie down. He leads us through a series of movements, simple yoga poses and stretches, and tells us to breathe and feel our abdomens rise and fall and not to release so far that we are no longer being mindful. Mindful. That is the word of these last few weeks in this class. “Breathe,” he reminds us, constantly, and then he inhales so deeply and exhales so dramatically that I am a tiny bit jealous. I want to breathe like Hugh.

Ryan and I are fascinated with him. In our weekly meetings, he drops hints about what his life used to be like before he discovered mindfulness. “I used to live on Weetabix and adrenaline,” he says, and god I want to know what that means. He used to drink excessively. He was a journalist. He’s seen war. But he never elaborates. “What do you think?” he always asks. After we practice our yoga, we sit in a circle and Hugh talks to us about the past week. I feel an irrational urge to please him. He asks me if I did my yoga and quizzes us about the body’s reaction to stress and I want to tell him the right answer. When he looks at you, he twists his mouth and furrows his forehead and stares intently. He is listening in a way that people rarely do and it is unnerving, and almost exhilarating. The meetings take place every Wednesday between 6pm and 8pm, so we are always hungry, but we can tell that Hugh frowns upon eating during his class, even though snacks are made available. He allows us a five-minute break, during which I quickly gulp down an oatmeal cookie and some green tea, returning to the circle empty-handed. I do not want to disappoint him.

We are in week 4 of an 8-week autism study about stress and parents of children with special needs. Parenting is a stressful job for anyone, we were told by the doctor conducting the study, but parents of children with special needs have much higher levels of stress and therefore suffer increased health problems, including higher mortality rates. I know that I have a problem with stress, and I can’t blame my children for that. It’s always been this way. Of course, as I have gotten older and my responsibilities have grown, my levels of stress have increased. I have so many obligations to so many people and much of the time I feel as though I’m disappointing everyone, doing a sub-par job in every area of my life. I do not need to be told that this manifests physically—I get sick and can’t sleep. I feel knots of pressure in my shoulders and neck. Worse, I get irritable with the people who love me the most. I run regularly, which helps, but not enough. So when I heard about this study in January, I signed us up.

The first night of the study, we went around the room, introducing ourselves and explaining why we were there. Many of the parents are dealing with the same sorts of problems Ryan and I deal with—balancing our obligations, managing the particular uncertainty that comes with raising a child with special needs, feeling as though we are failing. One of the women started crying, which made several of us cry. We recognized something in each other. Hugh stared back at us and listened. Then he told us to lie on the ground, our calves propped up on our chairs. The room was hot and crowded. My arms rubbed up against the stranger next to me. Hugh instructed us to close our eyes and spent several minutes asking us to think about our bodies while we “noticed” our breath. I wanted to get the hell out of there. Panic started to rise up into my chest. I began formulating a to-do list. The trunk of my car needs to be cleaned. I need to put my clothes away. I need to pack Ben’s lunch. I do not have time for this. I do not have time.

We were given a notebook and a cd with Hugh’s voice on it and told to do this “body scan” every night. In the past weeks, he has given us many other exercises to help us be mindful, or aware, of what we are doing, what we are thinking, the sensations in our bodies. I have struggled with my own resistance against this. I do not like to dwell. I do not like to sit in a circle with other people and talk about it. I like to push it away and move forward and knock down whatever is in front of me. Even though it can be exhausting, a part of me likes to be in “fight” mode, even when I don’t need to be. There’s that Avett Brothers song that says “Ever since I learned to speak/ I used all my words to fight/ with him and her and you and me/ but it was just a waste of time.” Ryan says that reminds him of me. I am starting to realize that while this has served me well in many ways, while this has helped me to survive, it is not good for me and it is time to stop, or at least to try.

It is easier to be cynical and to make fun of the photos on the wall or to be annoyed with that one parent who wears boots with her sweatpants and talks about how her diabetes makes her have to pee all of the time. But that doesn’t get me anywhere. It helps that Hugh can be funny and that I can tell he’s been through some dark places. So I am lying down as many nights as I can, and I am listening to Hugh’s voice telling me to notice my toes and the spaces in between, to feel the sensation of my breath as it enters my body, to notice my thoughts and allow them to pass. I am giving it a chance, and I think it is beginning to help.

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